A 1st grade graduation present

Yes, I still have to finish the much-belated-long-awaited post about Ash’s birthday party.  Ditto for my medical update, and the bit about his CSE meeting, and, well, a bunch of other stuff.  The thing is, I’m trying to pack, and those updates take longer than I really aught to spend right now.  Trust me, packing isn’t what I’d rather be doing, context aside.  So, in the meantime, you get another quicky post.  It’s a quicky post about my big boy….seven years old, with his 8th tooth wiggly (he wants it to come out NOW so we can warn the Tooth Fairy about the move), and 2nd grade on the horizon in a whole new school.  My big boy, who mastered buttons (before snaps?!), who has started eating peanut butter sandwiches (and who will consume an entire apple, as long as it is cut into four pieces — they can be any shape, but it has to be four), and who thinks it’s silly that I can’t always remember that the puzzle he won at his school carnival has a shape technically called a stellated rhombic dodecahedron.  My big boy, who in the middle of all this chaotic limbo has grown into wanting to sleep with his knight light on, and wanting me to snuggle him to sleep in his castle bed in the first place, “For comfort.”

Did you catch the bit about how he’s moving on to the 2nd grade?  Good, because that’s the context of this post.  Ash did it!  He graduated from another grade, while in an integrated program, in the first try, for the second time!  I am so proud of him!!  And, because I have friends that are lovable dorks and who notice my inquiries to other friends into the existence of coupons which would help me get him certain things as a graduation present, sometimes those graduation presents actually come from someone else.  Someone else who needs to be tackled by the child they blame their impulse on.  *cough*

Ash opens the box.  Not so long ago, he might have had trouble getting to that point before he had finished examining the box.

Ash checks out his new dragon.  He likes that it’s so soft, as well as that it’s shiny and green with glittery gold parts.

Ash notices the strap-on wings.  Build-a-Bear probably did things that way because most of their animals get dressed in little outfits, but since we’re us, Ash learned the word ‘prosthetic’.  Of course, he immediately thought that we should bring his new dragon to the zoo to show the prosthetic wings to the zookeepers and suggest something similar for the one-winged birds that they take care of.  If they are unconvinced, he will make them watch the How To Train Your Dragon movie with him, where, of course, another dragon flies again with the help of a prosthetic half-tail.

Ash is pretty proud of his idea.

Now Ash wants to know about the pendant-style tag on a gold cord around the dragon’s neck.  The tag notes that this is a limited edition critter in honor of The Year of the Dragon, (and features what Steffan would like to note is a horrible rendition of even the simplified form of the Chinese character for ‘dragon’).  I explain.  Ash points out — oh, I’m so proud! — that this does not look like a Chinese dragon, and wants to know if perhaps the explanation was that it was adopted by a Chinese dragon family.

Ash reassures his new dragon that this is the last time he will have to be adopted, because now he is part of OUR family.

Ash is pleased to get confirmation of this notion from both Mommy and Daddy.

“And you will help the rest of my dragon family guard my castle at night so I can be safe to go on dream dates with Mommy.”

It occurs to Ash to ask whether I have to pack up his dragons for the move yet, or if they can continue guarding his castle.

Oh.  Oh, it’s ok.

Whew!  That’s a relief.

He wasn’t so sure about that.

Now that we’re all feeling secure, Ash decides it’s time to name his new dragon.

“The first part of your name is like your color, and I think the last part is “full” because you are full of shiny green….your name is GREENFUL!”

Ash thinks it’s pretty darn cool that he got Greenful BECAUSE HE GRADUATED FROM 1ST GRADE.

It’s also worth giggling over.  Of course, pretty much everything is worth giggling over.

Ash shortly discovers that Greenful doesn’t just like to cuddle and giggle and prove that he can fly, but that he also likes to fly INTO people and gently bonk their heads with his own, just like he used to as a baby, as a way of introducing himself.  Greenful earns the nickname “Bonk”….not bad for someone who has been hanging out with us for less than an hour.

Attempts are made at two-way flight patterns for Bonk.

But for some reason, Bonk prefers flying at Ash.

Ok, this time he’s ready and waiting for it.

GOTCHA!!!

Welcome to the family, Greenful aka Bonk.  You’ll find lots of love here.  Thank you, Steve, for sending him to us….at Ollie’s insistence or otherwise. ;-)

Fostering independence is not an excuse for being irresponsible.

He hadn't even gotten his shoes off and gone downstairs yet.

So.  Ash came home from school today, making it official — he only has 2½ days left of 1st Grade.  Ahhhhhhhhhhhhhh!

I’m not done screaming, no.

See, as soon as he got home, he checked the folder in his backpack JUST IN CASE they decided to send home any homework, after all. This is despite the fact that they haven’t sent any since two weeks ago, and he read on the class notes that they didn’t intend to.  But of course, at the start of the school day — with all that fresh, sensory chaos around him — he’s usually too distracted to remember to check his folder for things he’s supposed to hand in, unless one of the staff asks him if he’s done it yet.

There’s a time-sensitive form for the summer program that made it home to us last week, which we were asked to return ASAP. We did, but it sat in his folder for days. I pointed that out today, and the response was that it’s Ash’s job to take things from his folder.

Look, I know it’s a skill they’ve been working on with him. I know that, when it came to his homework, they knew I always had him do it and were more interested in seeing if he focused enough to hand it in on time, than they were in actually getting it on time.  But if they KNOW there’s a time-sensitive form we’re returning, don’t you think it would make sense to check for it themselves, and not rely on him to do something they KNOW he can’t yet be relied upon to do by himself?

Sheesh.

A phone call from the school nurse

I got a call from the school nurse on Friday.  The kids were on a walking field trip to a park near their school, and Ash tripped on some uneven sidewalk and skinned both knees and part of his forehead.  (He stayed at school, she just wanted us to know why he was going to be sent home covered in band-aids and with a flier about watching for concussions that she includes by rote.)

I find it strangely hilarious that the nurse says things like, “You don’t sound happy to hear from me,” after I acknowledge that I’m me and that I know that she is her (she is programmed into my phone separately).

Who is happy to hear from the school nurse?!  This isn’t even like the reflexive anxiety that comes with ANY call from the school.  I’m pretty sure calls from the nurse are NEVER good.  Does anyone get calls going, “Hello! I just wanted to tell you that your child bounced by my office today in a blur of healthy energy!” or, “Good afternoon! I thought I’d call and tell you that I saw your child walking by my office with his class, and he was the one child NOT trailing snot. His color was EXCELLENT,” or, “I just want you to know, with the school year ending, that your child has fallen remarkably below using his quota of band-aids”…?!  I don’t get random calls because the nurse just had to share with me the ADORABLE story of how when Ash was at the school breakfast they made the mistake of sitting him near someone eating cereal, and he immediately gagged and threw up on himself.  I don’t get little notes written about how FUNNY it is, how many ways a sensory kid can manage to hurt themselves semi-intentionally.  You don’t walk down the hallway and school and get that hand on your shoulder to get your attention, so the school nurse can just say hi, and let you know it was really SWEET how your kid caught the nasty stomach virus going around.

I can’t really feel sorry for her, either, because in the grand tradition of nearly all school nurses that have been in my life, her rough gig is coupled with a bad attitude.  My kid doesn’t have a crap immune system on purpose, or even because of bad habits….he has a crap immune system because he was born before he bloody well had developed one at all, and “catching up” after the fact only works just so well.  If his teacher has to rummage through your stash of spare changes, it’s because he’s already used up the personal ones we always provide, and that’s because he’s had to void between the times he’s given pre-scheduled toileting breaks, and the school system has not yet grasped the fact that an aid can allow him whatever independence is possible and vital to his development and optimal function in school, and yet still do things like watch him for signs that he’s about to have a potty accident because his ability to recognize the sensation of a full bladder or upset bowels is not functioning that day, and he needs a cue to know that he needs to use the bathroom.  If I am called to pick up a sick Ash from school and can’t get there within 5 minutes, it’s not because I don’t care, it’s because my efforts have not yet procured a safe way to retrieve him….which, by the by, would take more than 5 minutes even if I could drive on the spot and pick him up myself, because he attends a school program that we are not zoned for.  Oh?  And the fact that the one time I saw her that wasn’t directly related to Ash being sick or injured, was when she was at an IEP meeting, doing her best to make it harder for him to get the therapy lighting he needs?  NOT HELPING.  I mean, I try not to bury potential school nurse relations under my baggage from, say, when one of my school nurses almost killed me (not exaggerating) through idiocy and negligence.  But, seriously….this relationship has been established, and I am never going to be happy to hear from this woman.

For the record, Ash is fine.  Nothing was interfering with his movement, and his nociception is tending towards the, “Huh?  I got hurt?” right now, so he was more annoyed on the tactile front by the need for band-aids, than he was bothered by the cuts, scrapes and bruises themselves.

Little boy knees...

...after a few days of healing.

Unexpectedly excited to move into another rental

One of the many things which has been keeping me….occupied….is the bit where my family has to move this summer.  Our lease was up for renewal at the end of June, and our landlords wanted to not only raise our rent again, but to make us pay for water — the only utility currently covered under our lease.  See, when our water heated (not maintained since it was installed in the mid-80′s) recently broke and flooded our living room (“Are you sure you did not spill a bucket of water?” – landlady), they noticed that the water bill for this place was high.  Of course, they continued to overlook the fact that we’ve been telling them about multiple leaky faucets for four years.  Starting to get the picture?  Yeah, well….even if we weren’t still working on paying off our medical debt, this place….and those landlords….wouldn’t be worth paying even more.  I’ll spare you some empathy nightmares about things like mildewy carpeting laid directly over cracked concrete foundations, and kitchen drawers made out of cardboard (because unlike the wooden ones originally in there, the cardboard ones made at home at least slide in and out), and not bother going much further into that part of the story.

The trouble — well, the first trouble — of course, was finding somewhere to move TO.  Care of the aforementioned medical debt, our credit is still terrible and our savings wouldn’t buy a day’s groceries, so we’re not exactly in the position to buy a house yet.  As much as we’d hoped to not have to move again until it was into a place of our own, we were going to be stuck with at least one more rental.  The usual “fun” of having to rental-hunt was even more of a blast this time around, though, because apparently in the four years since we had to do it, the rental listings — across multiple sites — have been overtaken by scammers.  No, I will not drive by the outside of a house, ignore the realtor signs, fall in love with the outside, take your word for the fact that I’ll fall in love with the inside, send you a ton of personal information and money, and trust that you will send me the lease and the keys….all because you’re a God-fearing Christian working for some church/social service/educational program somewhere in Africa.  I got back many variations on that theme.  I also got some identically worded ones to the effect of, “I’m sorry for not replying sooner!  We thought we had the place leased, but the renter backed out at the last minute, so now we’re trying to get it leased ASAP.  You were the second to reply to the listing.  Now, I’m not going to answer any questions about the place until after I know you’re seriously interested in it, and I’m not even going to give you a vague idea of where it is.  Every time we have done that, the house was broken into.  So, please fill out this remarkably in-depth renter survey — which includes all your financial information, but don’t worry, we don’t actually care about your credit — and then after that, we’ll tell you where the house is, and arrange a viewing.”  Riiiiiigjht.  Nothing fishy there, either.  Point of fact, of the first 30 rental listings that were even potentially worth my responding to, 28 of them turned out to be scams, one was a real listing but wasn’t as advertised, and one just never got back to me.  The hunt continued in that vein, but after that I gave up counting.  Things were not looking good.

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While all this was going on, some local friends of ours were dealing with their own problem.  About two years ago they’d bought this fairly nice house and started fixing it up, but maybe six months ago the dad in the family got a job transfer opportunity he couldn’t turn down….in another state.  The mom and kids stuck it out here so that the kids could finish their school year, but in the meantime the family was split.  The dad was renting a whole house in the new state so that the family would have some place to all move into together ASAP, but it’s not like they’d counted on selling the house here, yet, or were prepared to do so even if it was anywhere close to a seller’s market.  They also didn’t want to be long-distance landlords to strangers, OR leave their property vacant for years.

If there’s music playing in your head….a sort of semi-conscious soundtrack accompanying the reading of this post….this is about where the tone of the music distinctly changes.

Yep — they offered to let us rent their house!  Granted, we can’t pay them as much as they are paying for their mortgage each month, but since right now they are paying for two houses and not getting ANY of that back in rent, they’ll still be a good bit ahead of where they are.  They get to leave their property in the hands of people they trust, and it frees them to bring their family back together.  If we hadn’t agreed to take their place, they were going to have to spend at least another year separated when they thought their time apart was possibly almost over.  The thought of that was intolerable, and, again, the alternate non-us alternatives were other kinds of exceedingly bad ideas.

We get to live in a much bigger and nicer property than our current one, for about $200 less per month than we’d be paying here if we renewed the lease here again.  We can quite possibly live here until we’re ready to buy our own home, assuming we don’t buy this place off of them once we’re in the position to do so.  We get landlords who are friends instead of slumlords.  (And they do have a set of their own parents local to here, to potentially serve and landlord-y middle-men if needed for arrangements in emergencies.)  We get to transition Ash into a new home that is at least familiar to him already, since he has played there a number of times.  We get to NOT have to hunt for rentals any more — a point of considerable note, since we’d found NO other viable options, and time was running out.  The new house is no further from Steffan’s workplace, although the commute will get slightly longer in the winter just because he’ll be taking a less direct route to spare our 4-wheel-drive-less car the worst hills.  The new house is only slightly further from a collective of grocery stores, hardware stores, etc., than our current one is.  We’ll no longer be right next to a park/playground and within-walking-distance-for-me-on-a-good-day of a library branch, but that makes less of a difference now that Ash is in school, and I’m not making near-daily use of both, all year long.  Also, whereas it used to only be inconvenient living next to a park on a few holidays and a smattering of random occasions throughout the year when people had some other excuse to party outside, the habits of our neighbors have been getting worse and worse.  This school year the spacial challenges of a kid with curb-to-curb busing on his IEP and a residence at the end of a dead-end-street (something we never thought of anything but the advantages of, before school busing snaffoos and flopped lawn sale attempts) were complicated further on a regular basis by a ridiculous number of cars parking illegally in the cul-de-sac at the end of the street — you know, the spot ANY vehicle not pulling into driveways not their own, let alone something the size of even a small school bus, needed for turning around.  This spring, and no doubt we can look forward to this into the summer, there has been a loud party going on in the park every Friday, Saturday and Sunday practically all day and night….and here and there, on other week-days as well.  So….no, we won’t really miss it quite the way we might once have expected.  Also, although we don’t know where Ash will be placed (it’s not like he goes to the school he’s zoned for, right now), there is a very good chance that his school will be within-walking-distance-on-a-good-day-for-me from home.  We’ll still have the curb-to-curb busing on his IEP because of Steffan’s variable schedule and my mobility issues, but it does improve the chances of, on those rare occasions when Ash gets really sick or something and needs to be picked up from school early, not needing to call Steffan at work, have him try and arrange for another manager to cover for him, have him drive to get Ash and bring him home, etc.  I also would have an easier time being able to volunteer / chaperone for his class, because I wouldn’t necessarily have to rely on Steffan being able to get the day off so that he could be the transportation.  There’s more about the school issue, below.  Eniways…

Both families get the satisfaction of helping the other out.  It works out pretty well for all.

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I won’t say that theirs is our dream house, but it’s a whole lot closer to it than the rental we’re in now.  We’ll probably have at least twice the useful space, for a start.  Part of that is due to the difference in square footage, part of that from the layout, and part from the fact that they have forced-air whereas this place has electric baseboard heaters….so we’ll only have to dodge little grates here and there, as opposed to losing entire walls because nothing can block the heaters, or even safely get too close to them without melting.  Their single-family is a “split level” deal.  If you come in the front door, the floor you’re on has the kitchen, dining room and living room, arranged in a rough sort of doughnut, so there’s pretty good visibility from one area to the next.  The kitchen has an impressive amount of cabinet space.  The living room is a fair bit smaller than the one we have now, but it won’t matter as much as it would otherwise, because we won’t have to use the living room for combined den space, play/therapy/homework space AND office/computer space.  If you go up a couple of steps, there’s a hall off of which are three bedrooms and the full bath.  The master bedroom will be ours.  One of the others will be Ash’s bedroom.  The third will turn into the office for all our computer-related things, our files, etc.  That one will probably be locked when not in use by one of the grown-ups, since Ash knows he’s not allowed to use the grown-ups’ technology unsupervised, and he usually has the self-control to follow the rules, but…  the play/therapy zone.  (Ash’s inflatable walled trampoline is dead again, so we’re debating whether we should get an actual mini-trampoline, and then get something like this — preferably while it’s still on uber-sale — for his ball pit.  Switching the use of one item back and forth would be nice to not have to do any more, and each of these separate things together would not take up THAT much more space than one giant inflatable walled bouncer.  Also, they’d be easier to stash away for temporary use of the space for other things, they won’t take several hours to inflate, and they aught to be harder to break constantly via hard-to-find leaks.  Ash doesn’t use the inflatable walls of his bounce-trampoline as much anymore for sideways crashing and for flipping over the sides, and since they always deflate almost immediately, it’s not like they are actually providing any safety over a wall-less bouncing surface. That ball pit thing should be compatible with his tunnel and his sensory hide-out tent….as in, they could be connected if we wanted them to be.  Admittedly it would be harder to bounce or to play in the balls WITH another kid at the same time, but that happens pretty rarely anyway, relative to his use of these things alone.  Also in this room, we’d put his book and toy shelves, his desk for arts and crafts, the ceiling-rig swing chair for spinning, etc.)

Oh, and their bathtub isn’t a comfort-molded hydrotherapy deal or anything, but it IS deep enough to actually soak in….again, a big step up from what we have currently, and a very happy thought since my 30-something little old lady’s body benefits greatly from soaks.

If you go down a few steps instead, you come to….well ok, here’s where I don’t have the layout totally straight in my head yet.  At one point there’s a half bath.  There’s a door that leads to the garage.  It’s a single-car garage, which is what we have now.  (Ours here acts primarily as storage space, as the workout zone, as well as a spot for the messier crafty projects, such as making castle beds.)  There’s a semi-finished basement split into two areas, one of which will hold our exercise equipment our computer/office area, and the other of which will hold the shelves for the grown-up library (we need to acquire a comfy chair and a small end table), with space in the middle that will get used for an air mattress for the occasional guest that would prefer not to be awakened by Ash bouncing into our living room and on top of them at 6am.  There’s another offshoot into a utility room where the water heater is, and the hook-up for our washer and dryer (conveniently, the only appliances they are taking with them are the only appliances we own).  Our chest freezer will probably end up in that space, too.  There’s also a fourth bedroom with a 3/4 bath directly off of it (shower stall, but no tub), that will end up turning into our studio space.

NOTE: Upon further reflection when we were just there for a birthday party, we don’t think that we can fit both the den space and the play/therapy/homework space in the living room.  So, we’ll have to make the living room just den space with a corner for Ash’s homework/project desk and a mini computer desk for him, and move his play/therapy area into the 3rd bedroom  up there, instead of making that our office.  That forces us to move our office downstairs, probably into the space we’d thought to use for the exercise stuff, and once again have THAT stuff set up in the garage.  I regret losing the notion of having our workout stuff in a more temperature-controlled area, and the notion of having no particular reason, for years to come, for Ash to ever have to go below living room level.  On the other hand, I like the idea of finally having our den space separated from the play/therapy zone.  I mean, sure, Ash will use the den space as well.  BUT, the living room won’t have to look like a grown-up space above a certain number of feet from the floor, and an aesthetically chaotic kiddie zone below that.  It will be far more relaxing for me.

I probably have the proportions wrong -- and left out details here and there -- but this is roughly the layout of the entry floor. The blue things are furniture we'd need to acquire somehow, to best use the space. In the alcove next to the coat closet, we should put some kind of low shoe shelving. We'll probably put our key hooks and maybe a few other hooks for hanging umbrellas, hats and scarves, on the wall above it. Against the back of the couch, we should create a sort of low wall of shelving. There would be slots for Ash's backpack and such, to hold the dictionary and things he uses for his homework, and probably some bins for holding seasonal toys that would be used outside but wouldn't stay out there. You know....here a bin of bubble stuff and sidewalk chalk, there a bin of water play things, over there a spot for helmets and pads. We also need a small wooden homework/computer desk and chair for Ash. We'll probably still use the little folding one in his play area, for doing crafty things on. It's great because you can change the angle of the top to either be flat or tilted, but the surface isn't big enough for him to, say, have the paper he's writing on, AND an open dictionary next to it -- and of course if you're changing the angle all the time, it doesn't work as a "station" for keeping the netbook he inherited from his "pretend big sister" for his own, custom-set-up use. Really, it could just be a table of the right size. There's a heating vent in the area, so we have to NOT block it.

The layout is going to take some getting used to, because it’s a very different division of space from what we’ve been living with since….well, more or less since the place we were in the process of moving into, when I had Ash.  (Well, we were SUPPOSED to still have two months!)  For the past four years in this last rental, almost all awake-time has been spent in one area of the house, because the living room was a den space, a play/homework/therapy space and an office space in one, and the eat-in kitchen was wide open to the living room, which the half bathroom and laundry area were also off of.  We’d head upstairs for baths and bedtime, but aside from that, most of the day, if at home, was spent moving together from one area of a single large space, to another.  I think this change could be good for us, organizationally, and I think it’ll be a nice change, aesthetically.  I think it’s coming at a good time, since Ash is only recently more able to navigate from one room to another and back again, with only minimal supervision (at least on most days).  Having the bedrooms as an offshoot from the communal living space instead of as their own private floor will feel a bit odd for a while, but probably won’t make as much difference as it feels like it will, because of things like the fact that side-to-side sound insulation tends to be better than up-down sound insulation, and because of the fact that we’re not giving up use of door locks.  Well in any event, it’s what is going to happen, so we’d best get used to it!

There are hardwood floors.  They are worn down hardwood floors, but I hardly care.  Oh, how we’ve missed wood floors, in our four years here with this horrible, semi-shag, 70′s brown, wall-to-wall carpeting!  Wood floors are so much easier and faster to keep clean and sanitary, and they are so much healthier for Steffan’s asthma.  Well ok, below living room level there are tile floors, but that’s still way breathing-friendlier than carpeting.

There’s a smallish front yard, a driveway that’s possibly two cars deep and three cars wide (nicer than our one-wide-but-three-deep driveway here, when it comes to unavoidable shoveling in the winter), a back porch, and a rather nice and oh-so-helpfully-mostly-FLAT back yard space.  We’re inheriting some fencing to help us enclose the back, since our yard here — which we enclosed via a rather patchwork combination of fencing types — is smaller.  We might use the wooden snow-fencing sections of our current fencing to create a visual border around the front yard that we can plant some partial-shade flowering vines on, and possibly use the plastic mesh parts of it to section off areas of the back yard space so as to, say, keep balls from being kicked into the garden zone.  We’ll probably do our gardening closer to the house in the back yard, both because there’s more sun there and because it aught to be easier to run a hose from wherever the spigot back there is bound to be.  We’re thinking of trying some flowers, as well as some herbs, fruits and vegetables.  I’d like to take our black raspberry bushes with us and plant them along one side — I’m hoping the transplant will go decently well, since the move this time should happen pretty much after they are done bearing fruit, so they aught to be starting to go dormant and can be cut down first.  I whimper at the thought of losing the bushes, because it took three years to start getting an awesome harvest from them, last time.  I’m also thinking of trying the trick where you staple weed fabric to the bottom of a wood pallet and then fill it with topsoil, to create a kind of self-contained gardening space for small plants in rows….and then letting strawberry plans get freely runner-happy within that.  I hear if you attach copper ribbon around the outside, it keeps slugs out.  Further towards the back of the yard, where there are more trees and shade, we can put the swing-set with its various attachments (sometimes I unhook a swing or two and hang a hammock or a pull-up bar or a board swing) and the sandbox.  If we ever nab one of those adjustable basketball hoops for Ash, we can put that there, too.  That leaves the middle of the yard for open space for running around, kicking balls, playing frisbee, setting up the kiddie pool or the sprinkler, etc.  There’s a shed in one back corner of the yard, too, in which we can keep the mower (we need a new one of those too, unfortunately….Steffan is eyeballing an electric model, because he doesn’t want to go with gas, but our purely-human-powered reel mower just isn’t going to….ha ha….cut it), the gardening tools, the pool and such when they are off-season, the rake, etc.  We wouldn’t want to put the snow shovels all the way out there, but the rest of it should be fine, and that’s less clutter in the multi-use garage.

The fact that the house is green doesn't hurt either. Oh yeah, and they are taking their big grill with them of course, but we got ourselves a $20 one that should do just fine, to replace the one we had that was mostly rusted through already when I rescued it from a curb a few years back. Hooray for being able to grill again! I don't know if they are taking their picnic table with them or not.

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The family that owns the house will be moving out during the first week in July.  That being the case, we had to get our current landlords to extend our lease THROUGH July.  Blessedly, their lack of thoroughness served us well for once, and they overlooked the part of the original lease which says that if we need a month-by-month lease renewal, we have to pay rent-and-a-half for those months….they just signed off on changing the end date of the current lease.  Ok, technically they could’ve done that because we gave them advanced warning, we’ve been here for four years already, and they decided to be nice.  There is far less precedent for that kind of behavior, however, than there is for them simply borking the job.  Eniways, the plan is for the other family to move out of the house during the first part of the week, and then for the dad to try coming back to clean up after them and to finish off necessary minor fixits before we move in, during the latter part of the week.  He’s not going to finish any major renovations or anything, but there are things like pulling up the old carpet and carpet staples from one of the bedrooms that hadn’t had the hardwood revealed yet, replacing two broken screens, and reconnecting the wiring that would allow us to have cable internet, because we’re not budgeting for FIOS and since the house was set up for FIOS, it can’t get DSL.  We’ll also finish any walk-through type things we aught to do, relating to those little details of a household that are useful to be aware of.

We’ll also come in around this time and start doing things like installing our fencing, transplanting berry bushes, and repainting the bedrooms.  We’re not going to invest in repainting everything, although they’d let us, but the bedrooms….yes.  For one thing, the two kids’ bedrooms upstairs are purple, and the one downstairs is a sort of lime green, and neither of those colors are quire relaxing enough on a wall for our needs.  We’ll probably make the one downstairs — the one that’s to be the studio — white, just to reflect light better.  The bedroom that’ll be Ash’s room will become light blue with a border of dark blue accented by glow-stars.  That’s what he wants, and played a part in his incentive to process the coming transition.  The bedroom that’ll be the play/therapy room will probably be plain white or pale blue, depending on what ends up making the most sense in terms of buying paint.  The master bedroom is currently painted white, so we don’t more-or-less-NEED to repaint it the way we do the purple and bright green rooms, but I’m so tired of the “rental-neutral” color scheme since that’s all we EVER lived with since getting the first place of our own over a decade ago….where everything is off-white with brown trim….that I think I’ve finally earned a bedroom I can paint marbled shades of pale sage and mossy greens.

Eniways, we’ll end up with 2-3 weeks to bring things over in small installments when we’re going over to the house to work on things, anyway.  I’d love to say that we can bring over a carload almost every day and have a whole lot less to do and need a smaller Penske truck to fit it on on the big moving day, but that probably doesn’t balance out against the gas cost of making that many extra trips, as much as we’d like for it to.  We’ll plan our big move — with the moving truck, and actually changing addresses — for the weekend of the 21st-22nd.  The aim will be to get the rest of the household shifted over, get everything into at least the right room, and get the major things set up.  With some things — like Ash’s castle bed — we’ll have no choice but to deal with take-down, move-over, and set-up-again all during that one day.  This leaves us slots around Steffan’s work schedule, during the last week of the month, to also come back here and do the final deep-cleaning, repainting of window trims that had paint ripped off by tape from having to seal plastic over the windows all winter, etc., before our lease here runs out.  We’d technically be in the new house for a week before the new lease would kick in for August, but that’s not a huge deal since we’re orchestrating all this with friends, and we can have the utilities and services transferred over whenever (or as close to whenever as we can get such things scheduled).  It will be quite a nice change to actually have a chance to clean and make hardware changes and such to a new place BEFORE moving into it, as well as to not have to deep-clean an old place while trying to move out of it.

It’ll be more complicated a process than simply settling our old things into a new place, of course.  Having just paid for a move and a moving truck and the painting supplies needed before rooms are full of stuff, it’ll be a while, for budget reasons if not also opportunity ones, before we can get all the new hardware, bits of furniture and shelving, etc, that we need to adapt and best make use of the difference in space (and in some cases, accommodate Ash’s changing needs).  I think we can make it work, though, and….with a little time….work pretty well.

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Now…

The biggest trick in all this, is that their house is in a suburb of the city we live in now, and that means a different school district.  Now, thankfully — and otherwise, we could not have responsibly gone with this plan, no matter the financial and spacial benefits — it’s another GOOD district for SpecialEd, with some comparable integrated programs and, as it happens, a larger budget.  We’re telling ourselves that all available evidence suggests the transition will be a positive one.  All the same, even if the new program meets or exceeds all of our expectations and hopes, there is the element of change to deal with.  Although Ash finished his conscious acceptance of the household move within a few hours of being told outright about it (we’d been building up to it for a while, as well)….once he knew it was a house he was already comfortable in, that THERE he could have his castle in a blue bedroom with glow-stars, and THERE we could, although we’d still wait for home-ownership for furrier pets, at least start him off by getting him a fish….the processing still took its toll, and we have been waiting to give that more time to sink in, before pointing out that he’ll also have to switch schools.  We’d like to think that the emotional transition won’t be as rough as it could be.  Ash has thus far lived in three houses over the course of his life, but only one within the past 4 years.  He has, on the other hand, already been in 3 schools over the past two years, because his (2 month long, half-day, special needs) pre-K summer program was in one school, his integrated K & 1st grade classrooms have been in another school, and the integrated summer program that he was in last year, was held in a third.  He’ll remember everything about and miss elements of and people in his old school, more than he’ll be upset about or shocked by getting to experience a new one.  Unfortunately, he will be starting from scratch when it comes to motor planning, sensory filtering, and his navigation of the school at large.  Now, his current program groups SpecialEd teachers, available classroom aids, and therapists by every two grades, so next year, even at the same school, he would’ve had a different GenEd teacher, a different SpecEd teacher, different aids in the room whether they were assigned to him or not, and a different ST, OT and PT.  (Granted, he ended up with a different Spec Ed teacher and only one of the same therapists between K & !st, anyway, just because of how things played out with kids who stayed behind, kids who graded-up, etc.)  His “specials” teachers — music, art, gym and library — might or might not have changed.  Some classmates would already have been familiar to him, the school administration would already have been familiar to him, and the general population of the school as a background to his day would already have been familiar to him, but the core of his “team” would have changed anyway.  I’d like to think he can maintain a friendship with some of the classmates he’ll be leaving behind, but that’s a whole ‘nother story.

We have his major major majorly important CSE meeting tomorrow afternoon.  There are going to be a HUGE number of people there:  myself and Steffan (until he has to leave for the end of Ash’s school day….which is also the first day back after a Memorial Day extended nearly-whole-week-off since they didn’t have any snow days this year, so think good thoughts for a first day back that pretty much everyone who regularly works with him, will be missing the end of), Ash’s GenEd teacher, his SpecEd teacher, his ST, his OT, his PT, his principal, one of his vice-principals, two school psychologists, a Special Education Liason, and by her own request, the assistant to the Director of Special Education for the district.  Issues debated will include an aid, ESY, playground accommodations, SAD therapy accommodation, therapy services, other tools, supplies and accommodations in general, and curriculum tweaks, in terms of both his challenges and his strengths, and also, of course, his IEP goals.  Ash’s SpecEd teacher is hopeful that learning about the transfer will make them more likely to honor his needs without the budget-based reserves that come with the expectation of having to PAY for what they agree his needs are.  Of course, we need lots of prayers not just that this CSE meeting goes splendidly, but also that it transfers smoothly over to the new school system (for which I also have to update his 20-page profile).

One of the trickiest of the tricky things is that logistics could interfere with even the smoothest and most acquiescing of CSE meetings and school system transfers, in terms of summer programming this summer.  The thing of it is that we’ll be moving, and Ash will be shifting between school systems, part-way through the summer, and probably part-way through any given summer program.  Things are further complicated by the fact that he needs to be bussed.  All things considered, we could use some extra, ESY-this-summer-specific prayers, too, because on top of all the usual reasons why summer programming is a very good idea for Ash, and ESY summer programming an even better one….orchestrating a move when he’s never out of the house, adds another layer of oh-dear-God entirely.

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And that, my friends, is the long and the longer yet actually shorter than it could be, of it.  Please light a mental candle, make a wish, think good thoughts, pray, or whatever your goodwill variant is.  All of this seems incredibly lucky, but we still need a lot of good luck to get through it well.

Autism, literacy, Halloween and hilarity

This is the Scarecrow costume design sketch that Ash did on the Magnadoodle. By the way, those aren't extra arms, that's straw sticking out.

There’s a tradition within the delightful (especially for anyone who grew up on Calvin & Hobbes and/or was a sometimes “challengingly” bright child and/or has ever worked in a school) comic strip Frazz, by Jeff Mallett.   The tradition of which I speak is that one of the main and recurring characters of the strip — a young boy named Caulfield (yes, CAULFIELD) — plans his Halloween costume each year around a literary figure, which the staff of his school are challenged to be literate enough, themselves, to guess.

Well, Ash isn’t quite there yet, but he is planning on ending his two-year Halloween run as a dragon — it’s shocking, I know! — and dressing up next Halloween as The Scarecrow, from The Wizard of Oz….which was a book we got him last Christmas and which he read shortly thereafter(We got the classic version of the movie from the library for him, on the heels of that.)  Perhaps I should provide a little more context for this phenomenon-of-sorts that leads to the bit with the hilarity.  See, we got the book because a like-new copy found at a thrift store for the price of spare change, was too good to pass up, and we thought, well, if Ash wasn’t ready for it then, he would be soon.  Not only was he ready, but he ate it up.  I got to prove to his teachers that he had reading comprehension skills they never would otherwise have had reason to believe he had, by having him do his reading log on the book, and having him answer questions like what The Cowardly Lion did that was brave.  He loved the story, he loved the characters, and he was engaged by their personalities and their plight….we had to “pretend” our way through him interacting with all of them, multiple times, after he was done with the book.  The Scarecrow, in particular, attracted his interest.  In fact, that character completely changed Ash’s perspective on face paint, which previously distressed him to even look at, let alone consider having ON any part of him.  I’m not sure what it was about the way that character’s makeup was done, but after seeing the movie (after seeing the illustration on the cover of his copy of the book), he was very enthusiastic about wanting to try having face-paint on him.  He even followed through with the professed intention, when Easter came, as a way of starting to get used to the sensation.

Scarecrow, Scarecrow, Scarecrow.  He insisted (and has yet to change his mind, despite things like a more recent love affair with the How To Train Your Dragon series of books) that he wanted to be Scarecrow for next Halloween.  I, “Need to make sure that he has the floppy hat with the point,” and that I, “Paint [his] face yellow-that-turns-into-[his]-neck with the brown mouth and brown triangle nose and black eyebrows”(actually, he wants to try putting on some of this face paint himself) — and, “Make him the blue shirt with the rope belt, and the brown pants, and [he] needs boots for all that walking on the road,” and oh yes, “A crow so that [he] can pretend to try to scare it, and be silly.”  I must also be sure to not forget to make him some fake straw out of yarn, so that it can, “Stick out of [his] feet and hands and shirt and brains.”  Just in case he wasn’t clear enough, he drew me a costume design sketch on his Magnadoodle.  Early on when he was first going on with me about this idea, I asked him why Scarecrow was his favorite character.  He told me, “Scarecrow is my favorite because he keeps wanting more brains so he can get smarter and help his friends.”  Allrighty then.  I’ll take this as another one of those times when he shows remarkable empathy for a character, shows self-awareness through what he casually relates to and admires.

It doesn’t end there, though.  Oh no, he’s got it allllllll worked out.  Although I keep trying to damage-control the fact that it’s hard enough for his Daddy to get off work on Halloween, and the chances are next-to-nill-would-be-generous that the entire, semi-extended family will not only go trick-or-treating with us, but also dress in costumes of his choosing….that’s just what he thinks should and hopes will happen.

Already once before, Ash told me about what character from the story, he has assigned to what family member.  Today, he brought it all up again, and I got him to provide explanations for why he chose each match.

  • He should be The Scarecrow, “Because he likes him best because he wants brains to be smarter.”  (Yes, of course we talked again about how Scarecrow, just like him, was very smart….he just had to find the right ways to show people that.)
  • I should be the Wicked Witch of the West, “Because then [I] could pretend [I was] riding on a broom, which would be fun and wouldn’t hurt [my] leg so much.”  Also, he thinks, “It would be funny for [me] to pretend to be evil and chase [him].”
  • Daddy should be the Tin Woodman, “Because he is kind.”  (That should get extra, delighted attention from those readers of mine who know the long- and much-used nickname I gave Steffan 15 years ago, and the derivative linguistic meaning thereof.  But if you do….shush, it doesn’t belong here, as it has been used in too many other places.)
  • Uncle S- should be the Cowardly Lion, “Because of the mane.”  It would seem — no surprise here — that Ash does not agree with his uncle about the notion that all men should have hair as short as possible.  For reasons I won’t get into here, I went from finding it very amusing that Ash picked that character for this uncle (who is probably the most concerned with issues tinging on machismo, of anyone in the family), to finding it rather satisfying that Ash would just love to see him with a big ol’ mane of hair.
  • Auntie L- should be Glinda, “Because then she can have kids being her Munchkins.”  Oooh, that’s another loaded one, even if he’s just vying for a cousin again.
  • Uncle A- should be The Great And Terrible Oz, “Because he would dress us as a giant, green head on a throne.”  Well….yup.  If anyone in the family was going to think it sounded like a perfectly enjoyable idea to dress up as a giant green head on a throne, it would be A-.  Ash nailed that one.
  • Last but not least, “Grandma should be Dorothy and Grandpa should be Toto because they live together and are companions just like Dorothy and Toto are.”

Oh boy.  When I’m not fretting over how to even get all three of us dressed to Ash’s satisfaction, I’m still cracking up over all that.  To be honest, this was also one of the only things I had to post that didn’t involve editing and uploading a ton of photos. ;-P

A first experience dying Easter eggs

About a week before Easter, we had a couple of “narrow escapes” on behalf of the fact that Ash felt the need to “check” the eggs in the fridge, “To see if they were ready to be dyed for Easter yet.”  Obviously, he was going to have his first experience dying Easter Eggs this year, and that was that.  Naturally, this became a complicated thing for me, as much because I’m me, as because he’s him.  I didn’t have time to seek out a non-perishable alternative that could be decorated in the same way (yes, I know there are many ways to decorate eggs, but he wanted to try DYING them), the smell of hard-boiled eggs has always been an immediate and severe gag trigger for me, and I also really, really, reaaaaalllllllllly was hoping to be able to keep Ash’s first-ever Easter Eggs, too.  So, I taught myself how to blow-out eggs, and practiced until I was confident that I could do it without breaking them.  (In the end, with the help of a thumbtack to make the holes and a nasal bulb for the blowing, I could have an egg sitting on our drying rack in about 2 minutes.)  Since Ash would want to share the activity with us, Steffan and I could dye the eggs that had already been blown out — since we are more capable of handling them without breaking them — and Ash would dye the at-least-significantly-less-fragile raw eggs, and I’d blow them out afterwards.  It’s not as if we wouldn’t be right there on hand to help anyway, so that would be good enough when it came to any potential mishaps with the raw eggs.

The evening before Easter, Ash got his chance…

I showed Ash more or less how these things work, and then he gave it a go by himself.

I had actually put him in one of his plentiful white undershirts, intentionally, just to find out how much dye ended up on it. Can you believe that it remained completely white?!

 

 

 

 

 

 

 

 

 

 

 

Ok, so we were a little surprised that we didn't have any broken raw egg emergencies.

A watched egg never dyes?

 

 

 

 

 

 

 

 

 

Waiting for eggs to get to the color you want, is haaarrrrrddddd!

After a little while, Ash no longer had the motor control to handle things by himself, so he "helped" me follow his instructions when it came to what to do with the eggs.

 

 

 

 

 

 

 

 

 

 

 

These were Ash's eggs, drying a bit after their first round of being colored. Note that he decided to make them all various shades of blue, green, and purple.

This was the first egg that was almost completely done.

 

 

 

 

 

 

 

 

 

 

 

The following are the eggs that Ash made this year — with a little motor help, but no artistic guidance — his first-ever dyed Easter Eggs.  Are they not GORGEOUS?!  I am so glad I planned things so that they could become keepsakes.  At this point I just have to find my spray-shellac, give them a few coats, and then use bead caps over the ends to protect the holes from being snagged and chipping further.  They did lose some of their vibrancy because of having to be blown-out AFTER being dyed, unfortunately.  It wasn’t being cleaned/rinsed that did it, it was stray egg that got on the shell while being blown.  You know how being “egged” is horrible for cars, houses, etc?  Well, that’s because egg is pretty darn good at stripping surface coloring.  :-P   I’d forgotten about that.  Next year, perhaps I’ll experiment with shellacking the dried, dyed eggs BEFORE blowing them out.

Blue/Green/Purple Egg -- View 1

Blue/Green/Purple Egg -- View 2

 

 

 

 

 

 

 

 

 

 

Blue/Green/Purple Egg -- View 3

Blue Marbly Egg -- View 1

Blue Marbly Egg -- View 2

 

 

 

 

 

 

 

 

 

 

Blue Marbly Egg -- View 3

This one was a really rich, mossy, loamy, forest-shadows green, before it faded.

 

This one had a kind of turquoise/green/yellow ombre fade thing going.

 

 

 

 

 

 

 

 

 

 

This one reminded me of a piece of turquoise.

This one....was just sort of Robin's-Egg-Blue. Ash had run out of spoons for involved dye jobs, so a blue egg was good enough for him!

 

 

 

 

 

 

 

 

 

 

 

The morning after Easter, Ash told me that he’d dreamed about dying eggs.  I guess this tradition is a keeper.  ;-)

Easter 2012

Last year Easter was ON Ash’s birthday, and Steffan still wasn’t allowed to take the day off.  I had staged an egg hunt in the living room (see photo HERE), and that was about that, for what we could do for the holiday.  This year, Steffan has a boss that tries harder to remember — and accommodate — the fact that my husband is a person with a life and a family, and not just a hard worker in a cruddy job.  (♪♫ And the choirs of angels sing! ♫♪)  Despite the fact that April currently has more events, occasions, appointments and meetings than days, Steffan has had his work schedule arranged in a dysfunctional way that actually allows him to have the time off he needs for them, instead of a dysfunctional way that doesn’t.  This is a considerable relief, as well as cause for celebration!!  (I mean, Steffan even manages to have a day off for the family birthday party, for Ash’s actual birthday, AND for Ash’s birthday party!)  And after a day when Ash had a show to do, followed by an Endocrinologist appointment for me, followed by a doctor’s appointment for him….following a day when a doctor’s appointment for him was followed by a Rheumatologist appointment for me and then his show….a day off together that was only being spent on Easter, was going to come as a celebratory relief anyway!

There was another photo in which Ash's new hat wasn't falling over his eyes, but he happened to have his arms outstretched in a "Ta Da" gesture, and it looked like he was trying to crucify himself. Just....no.

Steffan is Cathoic, so Easter Sunday started with church.  Now, normally if Ash and I accompany Steffan to church, it’s to a special GLBT & Friends mass held in the evening.  That mass has the benefit of being smaller, being quieter, being more personal and informal, and being entirely comprised of people that are so happy we’re willing to let them get to know our son, and let him get to know them, that they are more than happy to be extra understanding of his special needs.  (It’s quite sad that that’s the way it is….but that’s the way it has been.)  This, though….this was a standing-room-only, 9am Easter Morning, gospel-style mass.  Honestly, Ash held up pretty well.  It might actually have helped that, with nowhere else to fit, we ended up being herded into the front pew, where few people automatically go no matter how friendly the church.  Being in the front put us closer to the loud music, but it did allow him to watch the amusing antics of the man at the piano, as well as randomly get smiled, winked and waved at by the Pastor, as well as a member of the choir that knew us.

I have to say, too, that I am ever impressed by this church.  I mean, it’s not every Roman Catholic church that a spiritually eclectic woman can show up at on a High Holy Day, and not feel offended by or at least uncomfortable with a regrettable chunk of the proceedings.  I mean, the Pastor is such an avid and outspoken supporter of….well, the same kinds of things we are….that we sometimes find ourselves wondering how he has managed to not get stomped on by Vatican hierarchy, yet.  Eniways, there were only two bits that made me twitch a little, instead of cheer.  One was a direct bit of required liturgy straight from Paul, in which the Jewish tradition of Passover was used as a metaphor for purging yourself of the sinfulness of Judaism.  Paul’s so good at that kind of thing.  The other was a line from the homily in which it was noted that eggs have been a symbol of Easter for hundreds of years, and went on from there….but the part of me that knows about things like “pagan” traditions older than Christianity, and Eostre, and eggs coming into things as a fertility springtime symbol….well, it got a bit fidgety, and wished that among the many religions the Pastor made a point of including in his goodwill, he’d thought to include those “New Age” ones that are actually really, really Old Age.  Ahh well.  It’s a learning process, at at least his mind is far more open to lessons, than most.

Overall, since Ash handled things well, it turned out to be an enjoyable Mass.  One cute moment thrown in was when the Pastor surprised a child congregant with a 4th birthday cake, and having everyone sing the birthday song to him.  (He also snuck over to Ash afterwards, and whispered to him about how he knew HIS birthday was coming up soon, too, and he hoped to be able to do something to celebrate it.  As it happens, our annual mass family birthday party thing is this coming Sunday, which is also the GLBT & Friends Anniversary Mass, so the Pastor, as well as some of our friends from that, are probably going to stop by the party on the way there.)  Another highlight was watching the baby who got Baptized — a baby who looooooooved bathtime, and considered water dribbled on his head to be close enough to provoke a lot of giddy arm-waving, drooling grins, and hiccupy giggles….also a baby who apparently passes out cold, mid-giggle, several seconds after bathtime is over.  ;-)   It was pretty adorable.  And of course, Ash loved getting to wear his own special outfit that let him be dressed-up like the grown-ups.  Steffan and I both wore burgundy-and-black-based dressy stuff, so that we’d match Ash, and we drew a lot of attention that Ash quite enjoyed.

There was an egg hunt for the kids after the Mass, but it just involved some eggs scattered loosely over a small patch of lawn, and by the time we’d spent a few minutes taking the pictures Ash wanted, all the eggs had been collected.  Excess candy was offered to us for Ash, but it’s not really a candy thing for him, it’s an issue of the fun of the hunt, so we thanked them and told both them and him that I’d just give him an Easter Egg hunt in our yard.  He wanted to change into a bunny for the egg hunt anyway.

I didn't get around to making face paints, so I just used some of my eyeliner to give him a bunny nose and whiskers. His re-used froggy Easter basket was still waiting, full of things like filled eggs, so we just did the hunt with empty eggs I had left over, glued together from broken ones, and a basket that the parent of another child in his class, had given out.

Doing the egg hunt in the front yard worked out rather well.  We got through one round of him finding the eggs after I hid them, and then N- the neighbor’s boy, and a young cousin of his, noticed us and came over.  Ash showed them the basket of eggs he had found, and they decided to get involved.  We spent the next hour or go getting into switched-up teams, and taking turns hiding the eggs and finding them, in different combinations.  Ash was re-introduced to the game of “Hot / Cold” during this activity.  Now, our front yard does not make for a very challenging egg hunt despite the need for mowing (and our back yard still has piles of deer droppings all over it), but everyone had a good time anyway.  In fact, N- later whispered to me, “You know, I did not think it would be so much fun to play the Easter Egg Hunt game.  I was just doing to to be nice to Ash.  But actually, it was a lot of fun!  I had a really good time doing that.”  Of course, as the mommy of a sensory kid, I also have to note with pride that Ash kept those ears-on-a-headband and that almost-face-paint on, the whole time.

He's just as giggly as a bunny as he is as a boy.

Ash's method of hiding eggs is to toss them around randomly. Then even he doesn't know where they are. ;-)

After we’d used up our steam for finding eggs, N- and his cousin wanted to know if Ash would like to come to the park with them and play “soccer” — which really meant taking turns trying to show off how far they could kick or throw a soccer ball.  That itself was amusing because N- in particular wanted to show off for Ash, but N- has only a smidge more athletic prowess than Ash does….and Ash doesn’t really have any.  Still, it all worked out well enough for them.  N- and his cousin were eventually ready to move on from there to the playground, still with Ash, but Ash was wearing out between his continued recovery and the excitement of the day, so I thanked them and excused us, so I could take him home to rest for a bit.

"Daddy, wake up! I'm pretending to be the Easter Bunny and I found and hid and found all the eggs, so now you have to see what I gave me!"

Easter goodies left under the Easter card that Ash had made the Easter Bunny.

After a bit of a breather, it was finally time to discover what the Easter Bunny had left him.  I’d covered the area with a blanket, earlier, because I knew if he got distracted by it before church, things would not go smoothly.  When the great unveiling occurred, Ash found that under the card that he’d made for the Easter Bunny (and mind you, I had just suggested making an Easter picture….it was Ash’s idea that it was meant to be a card to be left for the Easter Bunny — we’d never put much fuel into the EB myth, but he’d picked it up at school), was left a bunch of goodies for him.  The EB had filled his old froggy Easter basket that we’d left out.  There were Easter/Spring-y pencils, since he enjoys choosing between thematic pencils whenever he does his homework.  There were two brother-bunnies, both small and soft and otherwise identical, but one with blue fur, one with purple fur.  The EB must’ve heard about his interest in matching up his stuffed animals into likely genetic as well as emotional families.  There were a few shiny plastic eggs, one filled with a few sour-sugar-covered jellybeans to try (in a tiny ziplock bag, so they wouldn’t spill all over the floor when he opened the egg), one filled with a new red wiggle worm to replace the one that broke, and the rest filled with animal stickers of that variety where if you tilt them, the picture changes.  Ash can’t get enough of looking at animals, after all.  There were 3 small chocolate bunnies (he gets to eat half of one of them, if he first eats a significant quantity of something healthy he doesn’t normally consume a significant quantity of).  There was also one of those gel-and-air-filled sensory fidget squishies, shaped like a yellow chick, that had an LED ball inside it that flashes colors for 15 seconds or so, after you whack it.

There was also a DVD of “Pete’s Dragon” from our friend Jessica.  On top of that sat this year’s traditional bunny, which actually looks a bit like it might be the baby of the bunny featured in that linked post.  There was also a fabric flower with a bendy-stem, from us.  I’d thought of getting him a blue flower mylar balloon for Easter, since he enjoys them so much.  I’d also thought of getting him some manner of blue flower, for his school performance.  Since I didn’t have the opportunity to get that far, I reconsidered the balloon plan, and decided to get this sort of blue flower, for Easter, instead.  Now it can be a (somewhat) permanent prop for his imagination play — whether he’s acting out a more elaborate story in which a flower is featured somewhere, reflecting on the number of times he’s come across a reference that people often give flowers as a token of affection, or merely pretending that he can smell flowers.

This is the Easter card that he made the Easter Bunny.

Oooh....all kinds of good stuff in there!

 

 

 

 

 

 

 

 

 

 

You can't see it in-frame, but Ash is holding up the DVD triumphantly.

Ash is "smelling" his flower. Just take his word for it.

Those stickers are pretty cool, and it hasn't even factored in yet that they are stickers.

 

 

 

 

 

 

 

 

 

 

The chick glows!

The chick's head kind of goes BLORP, when squeezed.

 

 

 

 

 

 

 

 

 

 

Magic Wiggle Worms. $6 at the zoo gift shop, $1 at DollarTree.

After a while of playing with his new things — by the way, the chick is no longer capable of going BLORP, although it does still light up — Ash settled down to watch Pete’s Dragon, while Steffan made ham for dinner.  Specifically, pieces of ham were grilled up in a base of orange juice and cinnamon.  Ash likes ham, but has never had it coated with anything before.  He ate it anyway!

Under all of the circumstances, he was allowed half a chocolate bunny for dessert. He kept making it hop to his mouth. Gee, and as a kid, I wasn't sure which made me feel worse....going straight for the head, or torturing it by eating up from the feet.

And that, my friends, was Easter.  Well, aside from the bit where the evening before, Ash dyed eggs for the first time…!

A few moments from Steffan’s birthday

I wish that inflatable walled trampoline bouncers sized for living spaces, were more durable. This one had the walls completely inflated the night before, but in burning off birthday party energy, Ash had already deflated half the thing, a few hours into the event.

Ash practices blowing the noise-maker that will eventually be embedded into the mouthpiece of the fake horn/bugle prop I’m making for him for his show.  If he doesn’t hold on tightly to it, it goes flying through the air when he blows it.  He finds the projectile quality hilarious, I’ll grant you.

Ash hugging Daddy after singing him the birthday song an extra, early time, because he just couldn’t wait.  By the way, Ash wore that green shirt on his Daddy’s birthday, because his Daddy’s favorite color is green.

Steffan sits, watching and listening to Ash.  That’s the new hat he got recently, by the way.  I mention it because…

…this was Ash on the day that Steffan got the new hat (to replace a different one that has served its time keeping the sun out of his eyes)A new hat for Daddy means a new hat for Ash to try to appropriate.  That’s just how these things work.  Ash doesn’t necessarily….ok, ever….succeed in truly appropriating Daddy’s hats for himself, of course, but you can’t say the efforts aren’t cute!  He knows it, too.  Of course he does.

Steffan is already wearing the shirt I made for him (because I do that kind of thing), and had given to him that morning.

It’s perfect for him, if you know him.  He gets a lot of grief — not from me — for his inner Don Quixote.

Of course, a shirt designed by me still isn’t as awesome as a shirt made with a picture Ash drew for him.  More awesome yet?  A Daddy who has no qualms with wearing it around publicly.  I don’t have a picture of that yet, but Steffan has done it a few times, so long as it wasn’t to work or somewhere else likely to destroy it almost immediately.

Everyone together now:  “AWWWWWWWWWWWWWWWWW…!”

"Um, how old am I?" asked Steffan. "33 today, last I checked," I said, "The extra candle is for wishing on, remember?" "Well yes, but....um....I don't think you should try decorating cakes while Ash is having a hard time, even if I'm trying to handle him myself so that you can finished the cake you don't have enough time for," said Steffan. Whoops.

 

The cake, mostly fixed (nevermind that it should be 33rd, not 33nd like it was 32nd), and also later on after the removal of all the candles. Oh well.

The design was based on a snow leopard photo that Steffan loves.  Sort of.  Except for the bit where I was rush-improvising the cake decorating, because Steffan fell asleep on top of me on the couch from 9pm to 3am the night before….a time slot during which I might otherwise have made the cake long before his parents showed up.

Also?  I think we’re getting to that point where we need to start using the number-shaped candles.

Decorating snaffoo aside, everyone loved the cake. Even Ash tried some.

Ash still has trouble using forks.  He’d get a few flakes of cake stuck to his, largely by merit of frosting, and taste that.

Maybe if I pick up the cake and stick it ONTO the fork, instead of trying to stick the fork into IT?

Ahh, screw it.

Soft™Clothing alternative tactics customized shirt review

Ash tugs at and fidgets with his socks, after pushing his standard-jeans pant legs up and down and up and down. At no time did he fuss with his shirt, though.

About two years ago, I was  lucky enough to review Soft™Clothing’s nautical striped tee and their “jeans”.  Far more recently, I was lucky enough to review a pair of their seamless underwear — and am currently running a GiveAway of a 3-pack of the same.  It doesn’t end there, though.  Oh no no no no no.  See, so long as my brain is working, I go through life thinking things like, “Well yes, that’s splendid, but what if…?!”  Admittedly, sometimes that is not a good thing.  Other times, though, the most marvelous things can be thunk, when you’re thinking outside the box.  I know I sound like Dr.Seuss, but bear with me.

The thing is, Soft™Clothing has proven to be an excellent resource when it comes to wardrobing kids with Sensory Processing Disorder.  The OTHER thing is that the overwhelming majority of people with Autism Spectrum Disorder, also have at least some degree of SPD.  The OTHER OTHER thing is that people with ASD….especially kids with ASD….are known for being finicky about more than just how their clothes fit and feel.  Some might be satisfied if everything they wear is a certain color.  Others might only be willing to put clothes on if the clothes cater to their obsessive, passionate interests.

Go ahead, try to find clothes in the right size, fit, texture, style, color AND design that caters to your child’s veeerrrrryyyyy specific wants and needs.  Now try to do so without breaking the bank, the clock, or what passes for your sanity.  If you’re the caretaker of a child with ASD and SPD, you’re probably laughing/screaming/crying along with me, right now.

Ash isn’t as “bad” about this as many of the special needs kids I know in his diagnostic category, but he does have his themes, as it were, and once he started taking an interest in what he was wearing, he started wanting more and more of it to reflect those themes.  He would sometimes ask to wear a specific shirt, and that shirt would not necessarily currently exist in his wardrobe, or perhaps even in stores from which I might shop to accommodate the wish for his wardrobe.  What would follow would quite possibly be a meltdown, during which he certainly wouldn’t make any progress towards getting dressed in anything he did have as an option.  Now, I’m not saying that that’s ok, or that we’re letting Ash think that’s ok.  On the other hand, I’m not saying a little preemptive damage control is never welcome, either.

When I was offered the seamless underwear for review, I asked if I might also review a shirt for the express purpose of testing out how well it would take an iron-on fabric transfer.  See, those little beauties allow you to print out any design you have the whiles to come up with, and stick it more-or-less-permanently on fabric.  The end result isn’t as tactile-unobtrusive as something which is screenprinted, but, honestly, it’s a lot less stiff and annoying than many professionally manufactured shirts and such, with different kinds of appliques on them.  I’ve been using them lately, along with cotton t-shirts from DollarTree, to make Ash special-occasion-gift shirts for things like Valentine’s Day and St. Paddy’s Day.  Admittedly, I’ve designed those shirts to be wearable on more than just their source holidays, but, 100% cotton though they might be, they still aren’t comfortable enough for Ash to want to wear them regularly.  So it is that my mind held certain things — many of them involving dragons — in reserve for shirts like the ones from Soft™Clothing.  If THOSE shirts — already proven in so many ways (reflected in my review of the t-shirt and the accolades to them revisited in my review of the underwear) — could take a transfer well, I could end up with the ultimate, customized shirts for Ash.  Moreover, I could let you all know that, so long as you have an inkjet printer and an iron, you could end up with the ultimate, customized shirts (or whatever) for YOUR kids, too.

If CafePress let me stick the kinds of things I come up with onto Soft™Clothing items, I’d be oh so happy to reap the varied kinds of reward, lemme tell ya….but in the meantime, at least I could do this for myself.

This is the product image off the company website. The grey is sort of a light-medium grey in darkness, and the blue is a sort of cross between robin's-egg blue and turquoise.

In any event, Jessica from Soft™Clothing loved the idea of my test, and so I got two shirts to play with for purposes of the review.  Unfortunately, because of the season, they didn’t have anything in stock at the time, in the size and color combinations I was most interested in — because I already had design-transfers in mind — but I wasn’t about to let that stop me.  I ended up with a Medium in the Grey Heather/Blue Danube Two-Tone Raglan Long-Sleeved Tee, and a Medium in the Heather Grey Soft Sensory Tee.  Ash wasn’t especially fond of the raglan’s color scheme, so I set that one aside to test out how it took dye.

This shows the raglan given one dye job with cheap-o RIT dye in forest green, and, for contrast, the seamless underpants that are almost exactly the blue that the sleeves started off as.

Predictably for a 100% cotton shirt, the fabric took the dye as well as could be expected for the quality of the dye used.  I did get a very even color, which speaks well of the shirts as a starting point for more invested dye jobs.  As you can tell from the photo, the dye does NOT “take” on the thread used, which serves as a reminder that even “100% cotton” shirts don’t use 100% cotton thread.

I haven’t yet come up with the right transfer graphic to take advantage of this slightly odd end-result color combination, so this shirt might eventually get a transfer, or might end up getting a second dye job with some more potent black aniline dye that will “take” thoroughly on the whole shibang.

The grey tee was easier to tackle as originally intended.  I decided that since I hadn’t ended up with one of the “summer wash” tie-dye shirts to add a funky black dragon silhouette to, to make it look like, say, the dragon was breathing fire at the bottom of the shirt….or just one in plain navy, since Ash is big on blue and there are plenty of dragon graphics I’ve got waiting behind the scenes, that would coordinate with it….I would make the most of the unplanned color of what came, and come up with something that would not only work well on it, but really push the limits of the experiment.

If the fabric could hold a transfer carefully cut into all those fiddly little spikes, curves, points and edges, it could hold any transfer.

Ash’s favorite shirts tend to have one of a few things in common.  If they don’t have dragons or some other strong interest on them, they pay tribute to how cute he is, his impishness, or some other prized quality of his personality.  Since he can read, words are more than welcome.  With Ash having recently begun to experience bullying because of his differences, I thought I’d make him a shirt that stressed how distinctive he is, in a more positive light.

For size reference, this is a photo of the entire, not-exactly-laid-down-evenly shirt with the transfer on it. Trust me, those fiddly bits were fiddly!

I could not have been more impressed by the way that the shirt took the transfer.  The fabric is so smooth, I don’t think that any adhesive micrometers went to waste.  Washing the garment inside-out in cool water and drying it inside-out as well….as per transfer paper instructions….the shirt has thus far made it through somewhere around 4 wearings during the day and 3 wearings during the night, as well as the wash-and-dry following each of those, plus one before it the transfer-applied shirt was ever worn.  There has been no bubbling or lifting of the transfer.   Furthermore, the transfer has managed to stick that well to the front of the shirt, without any of the fabric adhesive going THROUGH the fabric.  That tells me that the weave is not only smooth, soft, and lightweight, but also very tight.  Even with the transfer applied, Ash finds this shirt more comfortable to wear than unadorned, standard cotton t-shirts.

In fact, this became one of Ash’s favorite shirts, the first time he discovered it.  “Mommy, this shirt is like my soft, stripy shirt!” he said, as he flicked through his closet to choose what he would wear the next day.  Yes, you really can feel the difference between these shirts and the average cotton shirt, at one touch.  Well, as Ash pulled it free of its hanger, he realized what the design was, and then he was even happier.  “Mommy!  This shirt talks about how I’m not BORING!!”

Homework time is full of potential triggers, but feeling physically comfortable always helps keep the mood light!

Ash wore the shirt all day that day — which happened to be a Saturday.  Not once did he twist it around him.  Not once did he tug on the collar until it distended enough to get yanked down over his shoulders as he pulled at it.  Not once did he lift it up over his stomach.  Even if it got a splatter of water on it when he washed his hands, he didn’t want it changed for a “dry” shirt.  He wanted to sleep in it that night, and since it didn’t appear to even be sweaty, I let him.  He took it off the next morning only after getting me to promise….and this should sound familiar….that I would put it in the laundry so that he could wear it again to bed that night.

The shirt is comfortable enough to sleep in, even when he's being so tactile that he wraps himself up entirely in super-plush blankets.

He even checked up on my laundry duties several times that Sunday, to make sure I didn’t drop the ball.

Now, normally Ash takes off whatever he was wearing at night, in the morning, before changing into his new clothes for the day.  This is not just a practical habit we’ve tried to instill in him, it’s part of his ROUTINE.  On Monday morning, however, he specifically called out instructions to not enter his room until he finished getting dressed.  Steffan, who was taking over get-him-ready-for-the-bus duties that morning, never thought to check for the night-worn shirt in the laundry pile, and wonder why it wasn’t there.  Ash had –  in defiance of his own routines, the high temperatures that day, and what in most other tees would have been a night’s accumulation of sweat — decided to be sneaky and keep the shirt on, layering the t-shirt which had been chosen for that day, the night before, over it.

On Monday afternoon, upon my suggestion that it was perhaps too warm to stay wearing two layers, Ash finally took off the OTHER shirt, and left the soft -- and STILL impressively un-sweaty -- one on.

He has worn it, as noted, a number of times since then.  He has worn it at home, worn it at school, worn it out and about, worn it to bed.  He is quite in love with the thing, which is pretty impressive since it is neither blue nor emblazoned with a dragon.  I can definitely tell you that I’ll be hoping to win Soft™Clothing shirt giveaways that other bloggers host, so that I can make Ash a heck of a lot more special shirts that delight his personality as much as his sensory needs.  I can also tell you that the Soft™Clothing shirts aced the test I gave them, and I thoroughly recommend taking advantage of them as a medium on which to create perfectly personalized shirts for your sensory kids.

A brownie AND an awesome shirt?! Man, life is good.

Five out of five stars on the iron-on-transfer front.  Four out of five stars on the unplanned dyeability angle, and that’s only because the synthetic thread doesn’t “take” the cheap dye most of us can afford.  (Granted, cotton sewing thread is generally only sold for decorative quilt stitching for a reason….it simply isn’t as strong as synthetic threads.)  I should add the disclaimer that I used a particular kind of fabric transfer paper — which is text-linked in this review — so results might vary if you use other brands.  I got better results on this shirt than any other shirt I’ve used this particular transfer paper on, though, which makes the Soft™Clothing shirts doubly perfect for this purpose.

All of these photos were taken on different days. Here, Ash is part-way through his bedtime routine, but asked me to take a picture of him in his shirt.

It's just so cool, he can't believe it!

~~~~~~~~~~~~~~~

Please see my review and GiveAway of the Soft™Clothing seamless underwear!

Please see my review of the Soft™Clothing “blue jeans” and “nautical striped tee”!

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SoftClothing seamless underwear review and giveaway

I have waxed poetic about Soft™Clothing and the salvation they can offer the wardrobes of sensory kids, before.  If you read that review, you shouldn’t be surprised that I’m doing another one, or that I will continue to do them whenever I get the opportunity to!  After all, the smaller size in the “jeans” I reviewed last are now in the spare-changes bin of the Special Education department at my son’s school, the larger pair currently travel in our car as a spare change (they are so much less bulky to stash away, than normal jeans are, too!), and the t-shirt, despite being used regularly for two years now, is….well, I’d say that it is still being worn to death, except it doesn’t appear to be showing any signs of aging at all.  I’m not sure how that is possible.  It has pale stripes, yet they show no more sign of staining than the dark stripes show of fading.  The fabric is super soft and lightweight, and yet there isn’t even a little hole anywhere despite what Ash’s use, and the subsequent washes, have put it through.  Need I reiterate that Ash, now almost 7, in school (including art class, playgrounds, gym…), and having ASD & SPD to boot, is not easy on his clothes?  No, I didn’t think so.

This time, I had the good fortune to be offered a pair of their seamless underwear — a Cribsie Award finalist — to review.  Specifically, I was sent the Organic Unisex Solid Seamless Boxer in blue.  Now, Ash had thus far always used briefs, so I was very curious about how he’d take to these fitted boxers.  I liked the idea that they might….erm….do a better job of CONTAINING my wriggly little boy.  I also thought they might lead to less chafing around for what women is referred to as the bikini line, because there wouldn’t be a seam….hell, there wouldn’t even be a fabric edge, there, to rub against him as he moved and moved and moved and moved and moved around.  The potential benefits of them being overall-stretchy-but-not-binding, and oh yes, SEAMLESS….well, those were more obvious and presumed.

I wanted to err on the side of looseness when it came to the first size tried, because I didn’t want Ash’s unfamiliarity with having underpants extending down his thighs at all, alone, be enough to turn him off from how the boxers (which are really more like boxer-briefs) felt.  So, on went the pair of size Mediums.  At almost 7 years old, and with his poundage in the low 40s, the Medium was a decent guess for fit on Ash anyway, despite not getting him to hold still long enough to measure his waist.  It ALMOST fit.  The legs and crotch area were pretty much perfect, but the waist was too loose to stay up, so it ended up drooping on top and falling 1/3 of the way down his butt.  Sure, I could’ve sewn in some darts, but that would kind of defy the purpose of seamless underwear.  According to Ash, “The blue underpants hug me soft and no distracting wiggle, but they are the wrong tall enough.”

Very well.  It was time to try the size Small.  I wondered if they would end up too tight on his thighs and crotch, since the Mediums were comfortable on those parts of him — or if the fabric would stretch enough that it wouldn’t matter if they started off more closely-fitting there, but would also actually stay ABOVE his butt, on his waist.  As it turned out, the size Small fit perfectly.  He put them on by himself in the morning, and went through the entire day without so much as a lower-body fidget except for when he was debating his need to use the bathroom.  At night — when he has to change into Pull-Ups because he hasn’t been able to night-train yet — he didn’t want to take them off.  He started asking me if he could put his Pull-Ups on, “ON TOP of the soft hug underpants,” but then reconsidered in favor of having me promise to wash the underwear that night, so he could wear them again the next day.

I guess we need more!!  Now, we don’t have more yet, but that circumstance has allowed the one well-sized pair he has, to be worn and washed and worn and washed enough times that I have high hopes for the durability of the item.  You’d think they came right out of the package, every time they are plucked from Ash’s dresser.  The color is still vibrant (and never bled, by the way, although I admit red dye tends to be the bigger culprit for that, in general), the fabric still showing no signs of distension or pilling or other kinds of wear.  Honestly, my own underwear doesn’t hold up that well, and I’m pretty damn sure it’s not as comfortable, either.

I give the underpants 5 out of 5 stars.  I’ll make it a 6 out of 5 stars if they keep adding color options.

I’d say that I wish I could show you a photo of Ash running amok in his “soft hug underpants”, except that would sound kind of creepy, for much the same reason that I am not going to post photos of my first grader wearing in his underwear.  You’ll have to settle for the photos that go with my outside-the-box review of some Soft™Clothing shirts, to be posted HERE.  In the meantime, we’re offering a Giveaway of a boxer or brief style 3-pack (a $30 value) in the size of the winners choice.  Please remember that I was offered the aforementioned product for free, so that I might review it, but the opinions contained in this post are entirely my own — well, mine and Ash’s.  Also note that if you win the giveaway, arrangements will be made between you and the company to have the winnings mailed directly to you, from them, at no cost to you or to me.

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